Sara Pyszka
  • Home
  • About
  • Books
  • Videos
  • FAQs
  • Contact
  • Newsletter

Happy National Cerebral Palsy Day, everybody!

3/25/2011

7 Comments

 
Hey guys!

I know, I haven't been writing as much as I thought I would. But today, as I was seeing what's going on with my facebook friends, I noticed my one friend posted a video informing all of facebook that today is National Cerebral Palsy Awareness Day, and in turn, inspiring me to write this blog.

I'm not going to repost the video, because it highlights all of the struggles people with cerebral palsy face, such as the ridiculous costs of wheelchairs and the endless amounts of therapy. Instead, I want to focus on what people don't normally realize at first.

People with cerebral palsy have feelings. We want to be accepted. We want to be respected. We are people who might care who wins American Idol. We are people who might not be able to stand the Twilight books. We are people who might want to walk down the aisle one day with someone they are madly in love with.

A lot of people tell me that I'm "amazing" or that I'm "inspirational" without even knowing my last name. Now, I completely understand that if you think somebody is inspirational, you think somebody is inspirational. There is nothing you can do about how you feel. However, we really don't want to be amazing. We really don't want to be your inspiration. We want to be your friends. We want to be your students. We want to be your boyfriends. We want to be your girlfriends. We want to be your peers.

I hope I gave you some unique awareness about people with cerebral palsy.
Happy Cerebral Palsy Awareness Day!
Sara P
7 Comments
Kati Lea link
3/25/2011 08:22:53 am

I agree. I don't have CP but have an adult-onset condition that causes progressive loss of voluntary control of muscles, so end up with similar affects to ACP.

I'm now using powerchair and communication aid and get annoyed when people only see the chair and the fact I can't speak well.

I get frustrated they can't see the person who also used to go to uni, walk, work, loves chocolate, dogs, brandy! etc.

As I spent some time going through the diagnosis system cos I wasn't born with my condition I sometimes think that's all people see!

You do inspire me, cos you are living with things I am facing in my future and showing me what would still be possible, by living a full, active and happy life.

you're welcome to my one of my friends anyday!

Kati x

Reply
Heather Klippel
6/28/2011 06:10:33 am

Sarah,

You're amazing. I'm in a very similar situation. I have CP and I'm starting my own blog. Actually we spoke once on Facebook. Do you have any suggestions of what to post on it?

Heather

Reply
sian
5/13/2012 10:50:37 am

i have cp dysmotility and dysphonia

i love my aac device its so cool

Reply
brian
7/10/2011 12:03:32 pm

I agree y should we settle for less

Reply
sian
5/13/2012 10:48:40 am

ddidnt no there was a cp day

there should be a
dynavox day

Reply
Mick Emerson link
5/19/2012 02:18:40 pm

I have a daughter of 8 yrs old with cp we are having an assessment with Dynavox on the 22/5/12 so fingers crossed plus we are trying a new therapy called spider therapy got an assessment for that 1/6/12 I just hope that my little girl will benefit from either one every little improvement is good I just hope we as parents don't over stimulate her

Reply
CantSpeakForEveryone
12/27/2013 09:33:59 am

I'm sorry but you can't speak for every single person with Cerebral Palsy. Not every person who has Cerebral Palsy uses a motorized wheelchair or goes to Physical Therapy.

Reply



Leave a Reply.

    Author

    Sara Pyszka

    Picture

    Enter your email address:

    Delivered by FeedBurner

© 2023 Sara Pyszka Copyright